Corbin’s Scoliosis

 
 


CONGENITAL SCOLIOSIS

THORACIC INSUFFICIENCY SYNDROME


Corbin was born with congenital scoliosis/Thoracic Insufficiency Syndrome.  We actually learned that something was wrong with his spine at our 20 week ultrasound, when we learned that he had a significant spinal curve to the left.  Corbin was born in April of 2006.  He was evaluated shortly after birth and everything seemed to be okay except for his spine which curved about 60 degrees to the left.  One of the major problems with children born with severe scoliosis, is that the ribs on the affected side can be fused and cause that side of the chest to not grow.  This results in a trapping of the lung and a condition known as Thoracic Insufficiency Syndrome.

We were sent to San Antonio TX, where a surgery was developed to help kids born with Thoracic Insufficiency Syndrome.  Corbin underwent his first VEPTR implant surgery there in March of 2007 when he was eleven months old.

Corbin now goes back for expansion surgeries every 4-6 months.  It is amazing how much he has grown over the last several years.

We have truly been blessed with this surgery.  One of the things that we were very fortunate to have is stories of others who had traveled this road before us.  We hope that if you have stumbled across this site due to your little one having to deal with this, the pictures will provide encouragement.  Please feel free to contact us.




 

Corbin - 9 months old

Other Information

There are multiple websites that provide more information and explanations about the VEPTR (Vertical Expandable Prosthetic Titanium Rib) surgery.  The following websites provide a few pictures which are helpful.